Sorry its been a few days since I've posted. Things are going pretty well with Kanyon. He is still off the vent, so that is great. He was on a C-PAP, but now he is on what they call a vapotherm. It does the same thing as a C-PAP, but it circulates the oxygen differently and it is more comfortable on the outside and on the inside. We are praying that he can be strong enough to stay on this and not have to go back on the vent. They are adding more calories to his feedings and he is now eating 24 cc's per feeding. I think they're trying to pack on some pounds. Speaking of, he is 2 lbs. 10.7oz. So far they have not heard his heart murmor, so they are assuming it is still closed! YEAH! As for his brain and the ventricle situation, they are calling it "non progressive" its not getting significantly bigger..so no treatments are ordered for that as of now. Keep praying for this to resolve on its own. He had a head scan sometime today, but we've not heard the results on how it looked. This new breathing machine seems to have helped his lungs, they sound more clear, so thats good. I think they guy just needs to get bigger. I just kind of threw a ton of information at everyone, but that is pretty much the way it is! Keep praying for him. We had a great weekend...we just need him to keep going! OK OK..here are the pictures!!!
This is his picture the day he was one month old. You can see how big and bulky this C-PAP is...it smashes his nose and bothers him. He LOVES to have his arms over his head like this. They are almost always up. When he has the C-PAP on, he likes to grab the sides like he's doing in this picture! 
This is what the VapoTherm thing looks like..you can see his sweet little face! By the way, the white tube in his mouth is how he gets his milk! 
Just another sweet little picture
His dear friend Terri Lee gave him this hat made especially for micro-preemies and it is so great. We had to wait for him to have the IV out of his head. I didn't put the hat on right..I was supposed to tie it off, so he kinda looks like Abraham Lincoln! Next time I'll do it right. Thanks Terri..we love the hat! 
Another hat picture and his eyes are open and looking around! 
Keep the prayers going for this little guy...everything is just so hard for him right now. I hate that he has to work so hard just to get by, but I know that prayers for strength will get him through. He is in his 30th week (gestational)..each day is one step closer! Thank you again for everything!
This is what the VapoTherm thing looks like..you can see his sweet little face! By the way, the white tube in his mouth is how he gets his milk! 
Just another sweet little picture
Another hat picture and his eyes are open and looking around! 
29 comments:
Kanyon is adorable! I am so glad that things are going well. We are praying for Kanyon to grow, grow, grow! In the NICU that my daughter was in, they had a part called "growers" When you got there, it made you so happy!! It's sounds like that is where Kanyon is. Praying!!
Aimee Akin
Jer. 29:11
I think Kan-the-Man is looking a lot like his daddy! Still praying! ~The Caldwell Clan
Yay, Kanyon! Way to GrOw! You are just so hansome.
I love seeing pictures of him! His weight seems to be steadily picking up. Good for him. We are praying daily for you guys and can't wait until the day we can meet Kanyon. Tom and Karen Tutt
Jaymie, in the picture where his cute little nose is getting smushed...he looks so much like Kory! I love that he is growing and has changed so much in just a month! May the Lord continue to give him strength and a little more ability to grow more and more each day! LOVE YOU
He is working hard, but just think of how strong he will be soon. I am so glad things are getting stronger or staying the same. He is just so cute!! Prayers are still going strong at school. We miss you bunches!
Love ya,
Brandi
Wow, y'all! He looks so much like Cory! He is such a little cutie! :)
Jaymie,
Kanyon is so beautiful! Thanks for the pictures. What a blessing that he is growing strong enough to work hard. I praise God that he is still off the vent and pray he may stay off.
My prayers are with you all.
Love,
Karol Edwards
'Not by might nor by power, but by my Spirit,' says the LORD Almighty.
Zechariah 4:6b
I will praise you, O LORD, with all my heart;
I will tell of all your wonders.
I will be glad and rejoice in you;
I will sing praise to your name, O Most High.
The LORD is a refuge for the oppressed,
a stronghold in times of trouble.
Those who know your name will trust in you,
for you, LORD, have never forsaken those who seek you.
Psalm 9:1-2, 9-10
"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world."
John 16:33
Thanks for posting pics! It's great to see him growing and getting stronger! Always thinking of you guys...
I love love love the pictures! He is so handsome, and all that hair! LOVE IT!! We are still praying constantly for all of you. Much love-Jessica
Jaymie, Kory, and Kanyon - you guys are being lifted up to God many times each day and we praise God for all the little milestones. Your White Oak family is so very anxious to meet little Kanyon. Stay strong little man and Mom and Dad, too!
Pam
I am so glad to read of all the progress that Kanyon is making. We will continue to pray for his health and growth. Thanks for the pictures.
He's looking good. We continue to pray! Much love!
David and Tara
We ALL understand that you can't just sit at the computer and update us constantly...so, you and Korey take care of that precious baby and get to us when you can.
He is so precious and getting so big! YAY for the KAN-MAN!
Hi Phillips Family,
I just wanted to drop a quick note to let you know that we are still praying here in Cincinnati, OH for little Kanyon and your family.
In Christ,
Amanda Laginess (Laurie Frantz's friend)
He is so sweet and beautiful--he and y'all are very much in our thoughts and prayers. Thanks for keeping everybody filled in!
Jaymie and Kory, he is so precious. Every time you post pictures I see progress. Elijah likes to sleep with his arms up, too. I think the boys are practicing their BB shots in their sleep! I share your prayer that life gets easier for Kanyon day by day. My heart aches for his struggles, yet he is a fighter. Thank you, God, for your amazing work! I love you - take care of yourselves!
Hey Jaymie, Kory and Kanyon, I'm so glad the hat fits ... Pretty soon it won't, but that's even better :) He is so cute and I pray for ya'll often and check your blog about 50 times a day. Keep up the good work Kanyon! Love,
-Terri
What a fighter and how grateful I am that he is. I can see how much he is growing and really enjoy the pictures. I pray often for Kanyon and for you too. I know that this is not an easy time for you, but you are doing a great job. Keep on keeping on and trusting God to take care of things. He is awesome and giving Kanyon all of the help he needs. May He continue to give you strength and courage.
Much love, Elaine Folding
Jaymie,
Amelia and I are thinking and praying for you and your family. You are going to have a fighter on your hands.
God Bless,
Matt and Amelia Wolfe
We are praying for sweet Kanyon, and for ya'll...
Jeff and Emily Turner
(Jeff is a Fantansy Football friend!)
Precious, precious, precious!!! Love the pictures! What a big guy to be wearing the hat!! Thank you for the update, we're praying!!!
Wow - Terri did a great job picking out that hat - it looks SO cute on his tiny lil' head!! He's got such a sweet face,...loved looking at your pictures!
WOW!! I have not had a chance to check your blog in a while and it is great to see that Kanyon is doing better every day. Jason and I continue to prey for you daily and are so thankful that things are going good. We love you guys, keep hanging in there.
The pics are great! I can't help but keep looking at the picture with his little eyes looking at the camera. Prayers keep going up and blessing are flowing down. Love you- Kory, Jaymie, and Kanyon
Ty and Lara
We wanted you to know you have been on our hearts. We will continue to keep you guys in our prayers! Love, Chris and Merry Clark
Jaymie... we just realized this was you writing now. we're so encouraged by the good news we keep hearing. Tell Kanyon to keep up the good work! By the way, you look great in the pics. I just hope I look that good a month after this baby comes!
-Cassy and Chad
It's been so long since you have posted. I am almost afaid to know why. I can only keep praying that things are well for you. Please give us an update.
It's been so long since you have posted. I am almost afaid to know why. I can only keep praying that things are well for you. Please give us an update.
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