Kanyon has done OK over the last few days. He started having more "spells" where his heart rate and breath rate dropped. It started a little Friday, then got worse Saturday, so by Saturday night the Dr. ordered a work up to check for infections. They put him back up to 3 liters of oxygen (he'd been down to 2) and that helped instantly. His "spells" almost completely stopped. So, we were thinking that was all he needed, but as it turned out, he has ANOTHER urinary tract infection. So far that is the only culture to come back positive, so we're praying nothing else is positive. Obviously something is going on since this is the 2nd UTI he's had, so they are going to do a test in a week or 2 to make sure he doesn't have reflux in his bladder/kidney area. They started him on antibiotics as soon as they started the cultures, so he's already been on them for 24 hrs. Once the 48 hours is complete for the cultures and they get all the info about this infection growth, etc. and they will take him off whichever antibiotic he doesn't need and give him the one that will treat specifically that infection. I hate that this is happening again and may be something we have to deal with. I hate for him to have to be on medicine, though I'm glad they have it to help "fix" him. We pray that this infection clears quickly and that it doesn't slow him down too much. We also pray that they will figure out what is going on that could be causing this. We continue to pray for his head (which seems to be responding well to his temp. shunt) and are always praying for his lungs to grow strong. Just his whole body-inside and out- needs to be covered with prayer. He looked good today and was doing great tonight. So I'm glad he's not acting sick with all of this. He's still truckin' right along. Just keep those prayers going.
On a lighter note, Saturday Kanyon turned 2 months old!! We took his picture by his basketball like we did before. The problem is we couldn't get at the same angle since he's in a different bed, so it may not be an accurate angle. Oh well. Here he is!
This is his first bball picture taken just before his actual 1 month birthday
This is him on his 1 month birthday with that nasty ol' C-PAP thing
2 months that seems in some ways like 2 years and in other ways like 2 seconds. We are thankful for the blessings of the last 2 months. He's come so far! Thanks for coming with us!
22 comments:
Wow, what a difference a month has made! He looks wonderful. It's so inspiring to read your blogs and I hope you know that we (including Rustt's Sunday School Class) are keeping you guys in our prayers! Keep on Truckin' little Kanyon!
May God Continue to Bless You All!
Sarah Brown
Wow! I'm so amazed at how much he has "filled out". Yet, he's still so tiny in comparison to the basketball. He's an absolute miracle. Keep up the great work Kanyon!! We will continue to pray...specifically that those yucky ol' UTI's go away!
You all are in our prayers!
Sheridie Dyess
We ARE with you, Jaymie, and will continue to be. You are all covered in prayers. Thank you for keeping us informed of what we need to specifically pray for. Kanyon looks great and I know he will continue to make progress daily. He really isn't even supposed to be here, yet, so he is still growing and developing toward "delivery" from the NICU!!!!Guess he was just ready to see the world a little early! I was glad that you could spend the last day of school with your kids. It meant as much to them as to you, I'm sure.
Love ya, Pam
Prayers are continued for each little part from head to those itty bitty toes. We are glad we got to see you. Keep your strength and faith.
Love ya,
Brandi
oh how he has grown!!! he just looks like a little old man hanging out! :) what a cutie!
sorry to hear about the UTI...those are no fun. we will start praying those antibiotics will kick in and get rid of those nasty bugs! im so glad the shunt is helping the swelling! YAY!
and HAPPY BIRTHDAY to mr. kanyon! i cant believe its been two whole months! wow! hang in there mom & dad!
love
scott & christina moffitt
grow kanyon grow!!!!!
Praying for all parts of Kanyon's sweet little body - that the Lord will continue to knit every part of him together to perfect completion. Thanks for documenting this journey for all of us who have your family on our hearts and in our prayers!
kendra vaughn
We are in Iowa visiting the girls. We are all glad to see Kanyon's two
month old pictures. He is really changing. The surgeries in Dallas must have been helpful, but we are glad that you are back closer to home. How excited your 2nd graders must have been to see you that day! Isn't it wonderful that Kanyon's grandmothers can enjoy being with y'all and give you freedoms to do other things. We love you and continue to pray.
Rick and Lynda Zant
It was really wonderful to see you guys this weekend. Glad to see the KanMan growing and thriving.
With Love,
Jen&Frank
It is amazing to compare pictures of Kanyon from one month ago to today- he has chubbed up!
He is always in our thoughts and prayers.
Zach & Kara and
Will & Levi Sheets
Jaymie...I continue to sit in awe of your amazing GRACE and fortitude...In the mighty name of Jesus we cover this sweet family, Cory, Jaymie and Kanyon with blessing, protection, and healing...Amen...lots of love, Stephen and Rebecca (Towers) Hensley
I continue to hold you close in prayer and especially ask for continued love, mercy and grace for each of you. As God continues to write the pages of Kanyon's life, He is changing all of us. Thank you for keeping us close in the journey. Grow, precious one, Grow. Love to you all!
We are still praying for you guys and sweet Kanyon. You are being such a good mom, Jaymie. It has to be tough emotionally, physically, and spiritually. We love you!
Jaymie,
I'm so glad you were able to see your students. I'm sure it was a comfort to them to see YOU!
Thank you so much for the updates and pictures...Kanyon is always in our prayers. I'm so proud of you and Kory. I pray daily that God will continue to give both of you strength.
I love you,
Christie
(The pictures of Kory holding Kanyon are precious)
Yucky UTI's! Tell him I am SO sorry about that, and I hope that medicine works superquick! Of course, we are still praying for every little bitty part of that sweet little guy! Thanks for the specifics to keep in our prayers as well. (Adley had that bladder reflux, so I will be praying especially that he doesn't have that!) Love you all SO much! I just can't believe how big he looks now! That is such a relative statement, isn't it?!?! :)
He's getting SO big! He's obviously got some good growing genes in him!
Happy Birthday sweet Kanyon!!! You are getting so big! Keep it up little man !:)
I know he is still so little, but he looks sooooo good! kanyon looks like a tiny baby and i can see the fat that little babies have.... praise God for fat babies.... we are so thankful for the internet and your interest in sharing your journey! we love you all! jf,lf,jf,wf,kf
I know that you hear this all the time, but it's often hour by hour with these little ones. I am so thankful that you know the slow rate progress is sometimes and that you praise the progress nonetheless. We continue to pray for him many times daily!! Everytime I change a diaper (which is often!)...it seems to be Kanyon time in my heart because I think of those tiny diapers of his!
Much Love-Julie(Jodi's cousin)
WOW!!! He has grown so much! We are still praying for you all!
Wow... I can't believe how much he has grown in a month! We love you and are praying for your family!
We continue to lift little Kanyon up in prayer. Jaymie - you are such a great mommy! Kanyon is very blessed to have you and Kory as parents.
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