We've had a pretty good weekend. I guess you could say that Kanyon made another big step. He is now in intermediate care. That means he moved into a different room in the NICU unit. Honestly, we were a little sad because we were so used to those nurses, that room, and basically I'm a creature of habit, so changes throw me off. BUT..we know its "one step closer to the door home" so for that we are so thankful. Plus, we have learned that it's some of the same nurses during the day so we still see familiar faces. And we are enjoying meeting new nurses at night.
Kanyon is still off his oxygen and only getting a little boost of air when he needs it (which we're hoping is getting to be less and less often). As of today, he weighs 4lbs. 9oz. WOW! This new intermediate room that he's in has a window so people can look in and see the babies. Saturday, I was standing out there looking in while my mom in dad were in there holding him. These 2 ladies walked up and were looking at the babies. When they saw Kanyon, they said, "Oh, look at that little one over there. He's tiny!" I wanted to say "TINY??? You think that's TINY?? He's HUGE!!!!!!!!!!" But I just stood there and grinned because they thought he was cute.
As of tonight Kanyon is back on antibiotics. They did another urine culture just to check since he's had those 2 UTI's. He is "growing something else" so they are going to treat that. His Dr. is going to talk to a specialist and see if they can't figure out what's causing it. They have a couple of possibilities....some more complicated than others. Hopefully they can talk and figure it out. The good thing is is that Kanyon doesn't seem to feel bad, so it was a good thing they did the culture "just in case". Maybe that saved him from having to get sick enough to start showing symptoms before they figured it out. So, we will continue to pray for his bladder/kidneys.
Our Dr. here talked to the neurosurgeon in Dallas and he is still happy with the temporary shunt that Kanyon has. His ventricles are decreasing, so this shunt is working. We are still praying that it continues to work and that the obstruction that is causing the problem will resolve so we don't have to do a permanent shunt later.
The "H" word got mentioned this weekend (HOME). Dr. says we're "on schedule" so we might be going home by due date (ish) July 7. Of course there are lots of factors there, but that is the first time they've even talked about it! Now we can start praying that we know what to do with a baby once he's home!!!
As for feeding, Kanyon has a new record (other than the first time when he was unbelievable and took the whole thing)....today he took 32 out of 42 cc's from his bottle!!! Hopefully he's catching on.
Well, I guess this was kind of a boring, "medically" (yes, I make up words) update, but I CAN'T POST PICTURES EVERY TIME OK!!!! Thank you for your prayers. Keep them going. Your prayers are not only blessing Kanyon's health, but they sure have brought peace and encouragement to me and Kory.
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28 comments:
Hey guys, just wanted to say we are still praying, and have been since we heard about everything. Such a joy to see Kanyon growing. We are new to blogging, so this is first time to comment. Getting on the bandwagon, though! -Rusty and Ann Caldwell
J-me, We were so sad that we missed getting to see him Saturday! I peeked through the window as much as I could and could see his bed! Can't wait until we get back so we can see him! Continually praying for his little (BIG!!) body! Love you guys
With tears in my eyes...Praise GOD! HOME! Sounds like he is just thriving like crazy. Stink about the UTI's. Parker colored another picture for him. I will get it in the mail! We love you.
Sorry we havn't commented in a while, however we have been keeping up with the updates. We are continually praying for your family, marriage, job, and your amazing faith. HOME, that is outstanding, I know you can't wait! We love you guys.
Michael, Audra, William, and Cade
wonderful news! We will be praying that he gets to come home soon and for your peace in that process.
We continue to thank God for all of his goodness. Isn't it wonderful to see it in action in your family's life? His pictures are so precious. The word home does sound good. Thanks for sharing your words and pictures. We enjoy celebrating all the good things. We continue to pray. We love you.
The Paris Zant family
Hey! Pictures are great, but great health updates are even better!!! We all know Kanyon's a big guy and how far he has come so let all those other people oogle over how precious he is!! We already know that too. I understand your habit thing, but you are right, you are getting closer everyday to home and I am praying for that day and the days that follow. Way to go Kanyon!!
I love the updates with our without pictures! I am glad he is one step closer to going home.
Keep up the good work Kanyon, we are so proud of you!
Praise God! And way to go Kanyon. ~smile~
You are all still in my prayers.
I remember how tiny Tim was... and today he's out at CDR. ~grin~
I love you. ~hug~
not boring at all!!! it's so exciting to hear all the good news...especially the "H" word! can't wait! you will know what to do, but if you get nervous you will have PLENTY of friends w/ babies to give you advice:) love you guys, and still praying!
stacey
Keep on keeping on little Kanyon Phillip! We are so thankful that we have God on our side to walk us through the good times as well. We will keep praying for those lungs to keep growing and for the UTI's. Love all of ya!
SOOO happy to see more good news! Kanyon is looking so BIG! I just want to pinch his sweet cheeks. God is so good! Always praying!
nothing boring about that post at all! i love the "h" word! and i love the great news about the steps closer to home. praise GOD!!!
How wonderful! I know that y'all are getting so anxious to get him home! We're praying everyday for y'all, and Dane can't wait to have a playdate with his friend!
We all appreciate any news on our baby so never think you are boring. I am so thankful that he is doing so well. He is in my prayers everyday and I continue to pray for you and Kory. Sue Asher
Jaymie,
How can you say this update is boring?! The H word is very exciting! I know you want that day to actually be here but how exciting that they are beginning to mention it to you! I am so excited for you, as I know you are too. Can't wait to see him in person...EmilyR.
I just have to get my two cents in, Jamie. Please don't ever think that we read your blog for entertainment and that you need to entertain us with pictures and funny stories. Of course, if the funny stories have to do with Kanyon, we want them. Pictures are great, too. But I read your blog to check on you and Kory and Kanyon and to see what our God has done and is doing in your lives. Thank you so much for allowing us this window into your lives. Kanyon and yall are all a part of our lives now. We continue to put him before the Lord, and we know His will will be done and has been done. But, we also know that He loves to hear from his kids and wants to know what we want. He craves our Thanksgivings to Him. Your baby is so precious. Can't wait to meet him. Love, Vicky
I just have to get my two cents in, Jamie. Please don't ever think that we read your blog for entertainment and that you need to entertain us with pictures and funny stories. Of course, if the funny stories have to do with Kanyon, we want them. Pictures are great, too. But I read your blog to check on you and Kory and Kanyon and to see what our God has done and is doing in your lives. Thank you so much for allowing us this window into your lives. Kanyon and yall are all a part of our lives now. We continue to put him before the Lord, and we know His will will be done and has been done. But, we also know that He loves to hear from his kids and wants to know what we want. He craves our Thanksgivings to Him. Your baby is so precious. Can't wait to meet him. Love, Vicky
What wonderful news you have given everyone! Kanyon is a champion and he'll be home soon. Believe me when I say that all first time parents have the fear of "what do I do now" when baby first comes home. And you learn and you adjust and you go day by day. Prayer works. Karen
Wow! Home-That is so exciting!! Believe me when I tell you that ALL parents are scared when they bring their baby home. I look back now and laugh at some of the stuff I did when we first brought Gibson home. I'm so glad his big boy lungs are working so well. He's come so far and before you know it, he'll be at home. Always praying!
Just a word of encouragement...My first child was in the NICU for 6 weeks and when we came home, although I was scared, I was prepared. The training you are getting at the hospital will be second nature to you and you ARE ready! Often new parents ask for the "Baby Handbook", but you are getting the "Hands-On Handbook". And you'll be a better mom because of the time you have spent with all the experts. Also, they don't mind phone calls with questions...they're there all night and want to hear from you anyway! Many Prayers- Julie (Jodi's Cousin)
i too am a creature of habit... so i feel your pain...but way to go Kanyon....
We hope he is home with you by your due date, and that all of his medical issues are resolved soon...
we love you all, take care!
we cannot wait to see this "HUGE" baby, love the floyds
Viva Dios!
Viva Kanyon!
Viva los Filipos!
Jaymie- it makes me so happy to see his cute, chubby cheeks and know that he is now 4lbs 9oz!! Hooray for Kanyon!
I am thrilled for you for Kanyon's progress! Hoping he'll be home very soon. :)
Hey guys I'm still sending up the prayers for y'all! I'm glad to hear the little guys is improving!
Love y'all
I have still yet to ever look at this blog without tearing up, this time definitely out of joy at how well Kanyon is looking and doing. I am seriously sitting here sobbing like a crazy person! He looks like Kory! We love you all so much.
Erin and Todd
Loved the previous posts pictures!! He looks so wonderful without his oxygen - it's great to see him becoming healthier and healthier! And how exciting that you guys heard the word (HOME!). We will continue praying for blessings to go your way!!! :)
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