Week 3 Feeding Camp

The end of the week was eventful so it passed quickly. After about 2 days, Kanyon finally decided to leave the tube alone. He is still covered in crazy arrangements of tape as we attempted to keep it as tight as possible. Now we just have to keep it there because we can't get it all off without taking the tube out. The tape gets on his nerves some, but he's been good about leaving it alone. As far as eating, our main goal is to take more from the bottle. He did GREAT Wednesday, Thursday, Friday, and most of Saturday, taking a little more each day. Saturday night he decided he didn't want to take it and is doing BAD now. He's always done that....good for a while, then bad. I was hoping we were making legitimate progress at the beginning of the week, but I knew that there was a chance that it could just be "good days" and the bad days were coming. I was right. Maybe they'll get fewer and far between. I am now nervous they're going to send us home if he doesn't show progress. I know that sounds crazy, but as bad as I'm hating being away from home, I want to get this taken care of (or at least make big improvements) without having to go home and come back. I think if his progress is too slow, we'll have to take our tube and go home and work on it at home for a while. They know what they're doing, so I trust them, but I'm still hoping for good progress. We've enjoyed Daddy being here this weekend and had lots of fun visitors. Paul and Katie came over this afternoon and let me and Kory go eat together. That was fun. Thanks again Paul and Katie. In other news, my mom came to keep me company so that was fun. We moved rooms on Friday. We knew we probably would because we weren't actually in the area with the other feeding kids. We are now downstairs with the rest of the feeding kids. Its a pretty cool set up, especially for the older kids (we are the only baby right now). It is like a pod of rooms with a big playroom in the middle. They have lots of fun out there. We are in the back kind of by ourselves which is good because its more quiet for a baby but the room is teeny tiny. Oh well. We like our little space and its our new home now. We don't have a flat screen TV anymore, but that's ok...i'm just thrilled to have cable.

This first picture makes me laugh out loud. This is a toy here at OCH from the playroom. They cleaned it up and let us keep it since Kan is the only baby right now. He had the best time playing with the toys on it. It was so funny!


"CHEESE!!!"




















It is the return of my little tree frog! He was clinging to his Grandma Gay Gay as he dozed off to sleep.

This is my view of Kanyon when I"m pushing him in his kid cart. I like it.

Paige and Stacey came by Saturday and it was so great! We LOVE them and had a fun time visiting them. We can't wait to meet their baby boy coming soon...maybe on my birthday!!!

This was a very fun treat. This is a friend from high school Erin that I haven't seen in FOREVER. She has been a faithful blog reader and prayer warrior for my little man and low and behold she works here at Our Children's House as a Physical Therapist on Saturdays!! As you can see, Kanyon was so very giddy to meet her!

Speaking of giddy...one of his all time fav people in the whole universe Nurse Kathy came to see us. She now works over at the Baylor NICU and came by to cuddle after she got off work. She was Kanyon's very first nurse and stuck with us the whole way through. She is a very very dear friend to the Phillips Pham.

And just when we thought the day couldn't get any better, we got to see some family. Kory's Aunt Geneva and Uncle John were in town for cousin Barrett's graduation so they (with Aunt Freida and Uncle Richard) came by to meet Kanyon. We were so glad it worked out to see them while they were in town and not having to wait until Thanksgiving!

These are Gram (Kory's mom)'s sisters and I'm thinking they were telling Kanyon some crazy stories about her. Uh Oh!!!

We enjoyed the pretty weather this afternoon. Rain or shine Kanyon always loves his bandanna.

We are gearing up for another week of this and really hoping for steps forward. We are also going to see his eye Dr. tomorrow for his follow up after his surgery. I'm anxious to see what he says.