Are we there yet?

I'll do pictures first this time:
Mark and Jocelyn came by the other night...very fun. Mark, by the way, is a baby whisperer. Kanyon was instantly chilled and content in his lap. Jocelyn..he loved you too!







Tuesday was a HUGE day in the life of Kanyon Luke Phillips!! He finally got to see Reese Cope! Oh man, it was so great. Reese put on a brand new dress and Kanyon made sure he threw up BEFORE she got there so that he could wear a new onesie. Reese was so cute. We would say "Where's Kanyon?" and she would point to him (seen in this pic). She was born the same day Ava was (his girlfriend in the last post) 2 days after Kanyon.






I can't believe it took us this long to get this picture. It was so fun. I mean, I'm pretty sure they're soul mates.. He likes girls with spunk and Reese has LOTS!



















How could this get any better? A pretty girl in his bouncy seat. She knows the way to Kanyon's heart is through is bouncy seat!


















Kate and Jenna (and Jody and Reese) came all the way from Abilene to see us! It was so fun. Beth dropped by too. What a fun day! Thanks so much for making the trip girls!



















Contrary to the look on Kanyon's face, Kanyon was NOT bored...he had a great time.

We got word today that we are heading home early next week! At the last minute yesterday, we got an appointment with the GI Dr. for this morning at 9:00. He was very very nice and is very respected around here, so I was glad to visit with him. It was nothing major, just an initial visit, but it was good to be seen and heard. He feel a lot the same as the therapists here do. He says it is very highly unlikely that there is a problem (other than reflux). He changed the dosage one of the reflux meds, added another one, and kept the other one that he started for us when he started throwing up. He thinks this is just going to take time and that a big part of all of this is behavioral. The therapists say the same thing. Mainly because he freaks out and fights before the bottle goes in, but once its in, he is OK. They say if there was more going on he would fight it while he ate and he doesn't do that at all. He said he is not in any hurry to put in the G-Tube and thinks that the NG tube is the right thing to do right now. He says we are treating a lot of the possible problems with the medication. This is the most meds Kanyon has been on (3) which kinda stresses me out, but at the same time, I know he needs them. He went ahead and set up an upper endoscopy (don't hold me to the spelling) for 4 weeks from now just in case things aren't better. That would be where he puts a camera down his mouth and checks things out in there. He seems to think things will settle down and this will all help, but wanted to get us on the books so we didn't have to wait if things were still bad. He was very nice and I liked his attitude about everything. SOOO..since that is done, we are pretty much ready to go home. His speech therapist is encouraged with his progress and feels like in the next 4 weeks he should be really close (if not done) with the NG tube. So we'll stay in touch with them and maybe even do some outpatient therapy for a while once we leave just to stay in contact. We'll see. SOO that means I'm going to have to be trained with the NG tube. How do I feel about that?? well, I already "dropped it" as they say (put it in) today. He threw up and it came out (sorry that's gross) so there was my chance. The tape and stuff was still on so all I had to do was run it up his nose and in. It really was easy and very fast....there is nothing to it. I knew that, but I was just nervous I would mess up. It is hard to mess up, but I didn't want to be the one to mess up, ya know. Anyways, over the next couple of days, I'll do it a few more times to make sure I feel comfortable doing it before I leave. I really like the nurse that is here this week, so I"m glad she's the one teaching me. Kanyon tolerates it so much better than he did. At first we would stay upset for like 20 minutes, but now he's done crying as soon as whoever is holding his head lets go. Not that I'm looking forward to messing with this, but it will be OK. He is pretty consistent with all of his feeds except 1st thing in the morning, so I think we are going to start playing with numbers and add more to his other ones so that he doesn't have to take as much in the morning and maybe get closer to meeting his intake goal. We'll see about that too. I feel good about leaving. I think we are ready and just basically need time and I'd rather let time pass in my own house that here, so this is good. (Ricky maybe that will help settle your family down and help them decide how they feel) I'm not sure exactly what day, but I feel like at the latest it will be Wednesday. They'll have to get our equipment (pump, tubes, etc.) ready for us and all that stuff, so we'll see. In the mean time we are soaking up all of the intense therapy and looking forward to being home and seeing our Longview friends...not to mention KORY!! We are not fixed but we are better and that is what we came for! This was way too long.