We are FOR SURE leaving for eating camp first thing Monday morning. We got word that everything with insurance went through, so we are good to go. I'm packing and trying to get the house cleaned and ready for me to be gone. I'm not sure why I want it clean when I leave, its about to turn into a bachelor pad and I have a feeling its not going to stay clean. :) It is a weird feeling packing for such a long stay. Last year when I left, I was in a total stress fog so I wasn't even really conscious. This year I have a little more stability and so its just different. 6 weeks is a long time. Last year we were there almost 9. I'm not expecting that at all this time. We are trying to soak up lots of time with Ollie and LOTS of time with Daddy as our weekends just won't be long enough. I am gearing up for MAJOR Mommy Kanyon bonding time. These kinds of things are hard (and I'm sure my "take it easy" pregnancy will make it a little harder) but they are a time that me and Kanyon are in this thing together and, without trying to sound cheesy, they do kind of bond us . Or at least I think that. I'm not sure that klp spends much time thinking about bonding.
I have every reason to believe that Kanyon will be resilient and respond great to the intensity of this whole thing, but I can't help but worry just a little that he will crash under the pressure. He's NEVER done that....when the going gets tough, the Grand Kanyon shows up takes it, so I'm hoping he will do that this time. Please pray for him. This is going to be a lot for him to take in and process. Not only will the feeding be intense, but he will be getting PT and OT every day (as opposed to 2 times a week) which will be great, but that is lots of work. Our schedule will for sure change feeding and sleeping. He's used to staying up late and sleeping late, not sure that will work there. AND we'll be sleeping and playing and spending our days in a new place that is very different from home without our rocking chair, toys, and our DADDY! Just pray that the little man handles it well. These are the times that I really depend on that personality of his that just goes with the flow and rolls with the punches.
I am going to have a lap top with me so hopefully I can update often and let klp fans know how he's doing. Thanks for your prayers for the Phillips Phamily. Again.
Sunday, September 20, 2009
Monday, September 14, 2009
Last Post for Now--Fun Videos!
Ok...just got a call from the clinic...we're not headed there tomorrow either! UGHHH! I am ready to get this thing started so we can get back home! I'll post when we get there and let you know to officially begin praying for EATING CAMP!!!
These are just a couple of funny videos of Kanyon enjoying life. This first one shows his "puppy" side. Because he needs his good hand to scoot, he often carries things in his mouth while he's scooting around. I think he looks like a little puppy. This booster seat is his FAV thing to drag around. ALL OVER THE HOUSE!
This last one is long and maybe pretty boring after a while. A couple of weeks ago when the weather was nice and cool, Kory wanted to give Kanyon his last bottle out on the porch. klp LOVES to sit on the swing on the porch so that was great. So, I sent them out to eat around 9-9:30. I showered, cleaned up the kitchen, did lots of other things assuming KLP was feeding klp and then settling in to go to sleep. FINALLY at like 10:30 I thought, "Oh, they must've fallen asleep out there on the porch. How cute!" So I opened the back door and was slammed with the sounds of laughter and squealing. The neighbors' dogs were yelping and barking and klp was LOVIN' it!! So being the fun (non bedtime minded) daddy that he his, KLP joined in the fun and yelled and laughed along with him. Contributing greatly to the explosion of FUN Kanyon was having. I ran and got my camera and since it was dark, there is only sound, but that was the best part. You'll notice klp has the hiccups. He had been laughing really hard for a long time. Hopefully you can tell the difference between the dogs barking, Kory's laughing, and Kanyon's squeals and laughs. Enjoy!
These are just a couple of funny videos of Kanyon enjoying life. This first one shows his "puppy" side. Because he needs his good hand to scoot, he often carries things in his mouth while he's scooting around. I think he looks like a little puppy. This booster seat is his FAV thing to drag around. ALL OVER THE HOUSE!
This last one is long and maybe pretty boring after a while. A couple of weeks ago when the weather was nice and cool, Kory wanted to give Kanyon his last bottle out on the porch. klp LOVES to sit on the swing on the porch so that was great. So, I sent them out to eat around 9-9:30. I showered, cleaned up the kitchen, did lots of other things assuming KLP was feeding klp and then settling in to go to sleep. FINALLY at like 10:30 I thought, "Oh, they must've fallen asleep out there on the porch. How cute!" So I opened the back door and was slammed with the sounds of laughter and squealing. The neighbors' dogs were yelping and barking and klp was LOVIN' it!! So being the fun (non bedtime minded) daddy that he his, KLP joined in the fun and yelled and laughed along with him. Contributing greatly to the explosion of FUN Kanyon was having. I ran and got my camera and since it was dark, there is only sound, but that was the best part. You'll notice klp has the hiccups. He had been laughing really hard for a long time. Hopefully you can tell the difference between the dogs barking, Kory's laughing, and Kanyon's squeals and laughs. Enjoy!
Picture Post
First of all, we were set to leave for Eating Camp today, but we are not leaving today. They are still ironing out some insurance things so hopefully we will leave tomorrow. OK....here we go.
Kanyon is obsessed with the dishwasher and he can hear me open it all the way across the house and he comes running.......scooting I mean. The kind of speed scooting where his rear end barely touches the ground, it just glides across the floor so fast that he's almost flying! Kory called me to the entry way a few nights ago and this is what we found in our front door. He must've grabbed a spatula while I was unloading the dishwasher. And apparently, he was trying to pry his way outside.
Several weeks ago 4 of Kory's best friends came in to town for his 30th bday. Kory had no idea they were coming, so it was fun to surprise him. It was so fun to let those boys be together and laugh. They are so much fun and we had a great weekend! Thanks for coming guys!
Frank with Kanyon, Scott, Paul, Kory, and Myles
BUT an even better part was that their wives got to come too! It is so hard to get us all together I couldn't believe that it worked out. It was so fun! And in case you're wondering, Kanyon was NOT starving for attention!
Kanyon is obsessed with the dishwasher and he can hear me open it all the way across the house and he comes running.......scooting I mean. The kind of speed scooting where his rear end barely touches the ground, it just glides across the floor so fast that he's almost flying! Kory called me to the entry way a few nights ago and this is what we found in our front door. He must've grabbed a spatula while I was unloading the dishwasher. And apparently, he was trying to pry his way outside.
Several weeks ago 4 of Kory's best friends came in to town for his 30th bday. Kory had no idea they were coming, so it was fun to surprise him. It was so fun to let those boys be together and laugh. They are so much fun and we had a great weekend! Thanks for coming guys! Frank with Kanyon, Scott, Paul, Kory, and Myles
BUT an even better part was that their wives got to come too! It is so hard to get us all together I couldn't believe that it worked out. It was so fun! And in case you're wondering, Kanyon was NOT starving for attention! Frank and Jen with Kanyon, Scott and Paula, Paul and Katie, Me (baby) and Kory, Myles and Lisa
I'm telling on myself here. I just had to take a picture of Kanyon's booty. I mean seriously!! This is what his clothes look like at the end of the day.....or half way through the day. I PROMISE I mop! I really do, its just a losing battle with this little boy. If I ever have another boy all of their hand-me-down clothes will be stained on the right cheek!
klp has recently taken an interest in the TV. We got an entertainment center so the TV is lower now, so I think he can just finally see it. This particular day it was Jeopardy, but Wheel of Fortune is another favorite. He sits in the same spot, usually chewing on something and takes in a little TV.....goes and plays....then comes back for more. I'm thinking watching Jeopardy is probably going to make him a genius.
He hears the camera and this is what I get. Its almost impossible to get a picture of him DOING something like watching TV because he hears the beep and flashes this cheesy grin!
Kory and I are Popsicle lovers and now, so is klp. I was eating one the other night and he would NOT let me eat in peace. He was licking the thing like crazy. So I decided to just share it with him. He wasn't very patient when we "took turns" so I just shared it with him at the same time.
Again, he hears the camera and does this. It took forever to get a picture of him licking because he kept doing this!
At Kory's softball game klp was kept busy by Addison's sand bucket. He played with it much like the bowl and spoon in the video. That lead to mud all over the face.
This picture is for the Tutts. Some of our sweet friends from church have 2 little boys that have been very LOYAL prayer buddies and friends to Baby Kanyon. They wanted him to have this Tshirt so they gave it to us back when Kanyon was still in the hospital. Well, he can finally wear it!! I took this picture just for them. As you can see, he LOVES it! Thanks boys!!
Now for BABY stuff. Here is the only belly shot I've taken this whole time. I look terrible, but I'm not too worried about it. I was around 23 weeks when this was taken.
Here is our latest sono of baby. Its one of the cool/freaky 4D pics. Its kind of a profile shot.
Here is the old fashion picture that is a little easier to see. This is the profile.
What does it look like to you??? Boy or Girl??
I'm telling on myself here. I just had to take a picture of Kanyon's booty. I mean seriously!! This is what his clothes look like at the end of the day.....or half way through the day. I PROMISE I mop! I really do, its just a losing battle with this little boy. If I ever have another boy all of their hand-me-down clothes will be stained on the right cheek!
klp has recently taken an interest in the TV. We got an entertainment center so the TV is lower now, so I think he can just finally see it. This particular day it was Jeopardy, but Wheel of Fortune is another favorite. He sits in the same spot, usually chewing on something and takes in a little TV.....goes and plays....then comes back for more. I'm thinking watching Jeopardy is probably going to make him a genius.
He hears the camera and this is what I get. Its almost impossible to get a picture of him DOING something like watching TV because he hears the beep and flashes this cheesy grin!
Kory and I are Popsicle lovers and now, so is klp. I was eating one the other night and he would NOT let me eat in peace. He was licking the thing like crazy. So I decided to just share it with him. He wasn't very patient when we "took turns" so I just shared it with him at the same time.
Again, he hears the camera and does this. It took forever to get a picture of him licking because he kept doing this!
At Kory's softball game klp was kept busy by Addison's sand bucket. He played with it much like the bowl and spoon in the video. That lead to mud all over the face. 
This picture is for the Tutts. Some of our sweet friends from church have 2 little boys that have been very LOYAL prayer buddies and friends to Baby Kanyon. They wanted him to have this Tshirt so they gave it to us back when Kanyon was still in the hospital. Well, he can finally wear it!! I took this picture just for them. As you can see, he LOVES it! Thanks boys!! 
Now for BABY stuff. Here is the only belly shot I've taken this whole time. I look terrible, but I'm not too worried about it. I was around 23 weeks when this was taken. 
Here is our latest sono of baby. Its one of the cool/freaky 4D pics. Its kind of a profile shot.
Here is the old fashion picture that is a little easier to see. This is the profile.
What does it look like to you??? Boy or Girl?? Therapy Videos
***As you can see, my awsesome sis in law and favorite computer nerd Rachel got my computer cleaned up so I'm back to blogging. I'll be catching up so there may be several posts in one day...so DON'T MISS ONE!!! ******
Until a few months ago, it never occurred to me to video Kanyon's therapy sessions. I'm so mad I haven't been doing it all along! It would be fun to go back and watch them and see progress. Here are a couple from the last few months.
This first one is of him practicing crawling. As I've mentioned before, he has been SO CLOSE to crawling for a while, but can't quite totally do it. Its hard to get a good video because sometimes he's REALLY good and other times he can't quite get the rhythm. This one is pretty good and I'm pleased to say that since this video, he's doing EVEN better. He can actually take a few "steps" forward without us helping him balance or supporting him or anything. His main problem continues to be that he gets too excited and tries to go to fast. His knees get too far under him and he rolls over. SOOOO its a fine line "motivating" him with the toys to crawl to us. They have to be cool enough to want to crawl to, but not too cool to get him all wound up. We have learned that we CAN NOT crawl to Daddy. That is just WAY too exciting and he wobbles and falls all over the place trying to get to him. I'm not sure that he'll decide to use crawling as a mode of transportation but we will continue to encourage him to do it more and more and hope that he will get good at it. We are so very proud of him. He works so hard.
This was exciting because its not really often that he shocks me with how good he does at something the very first time. I don't mean to sound negative and I'm not being negative about it, I just mean that usually we have to do lots of hand over hand/doing it for him/showing him what to do before he catches on. This video is of him in his gait trainer. We've had it for quite a while and he would just kinda sit on the seat and chew the velcro or maybe scoot it backwards. This day Celia (his PT) took the seat out for the first time so that he had to support himself and take the steps. She knows how to support him and keep this safe as far as his shoulders, etc. so I don't do this with him by myself. Its a professional only job at this point. I am just the idiot talking trying to get him to take steps. I had no idea what he would do when she put him in it, but Celia and I were both pleasantly surprised with his steps and his ability to provide a lot of the support on his own. He was moving it forward with his own steps! GOOOOOO Kanyon!!
In this therapy world we live in, its sometimes hard to watch EVERYTHING be so hard for him to learn, but you won't find prouder parents than those that have to watch their little one work for EVERY SINGLE move and development.
Sunday, September 13, 2009
Kanyon feeds himself!
Here is a little video I took a few weeks ago. Part of his eating protocol and routine is that the plays while he eats....I'll leave it at that, I won't go into long detail to explain the rest. For a while now, his favorite toy has been a bowl and a spoon. By the looks of this, you'd think that this child is feeding himself like a champ. The problem is, once food is on that spoon, its not so fun. But its cute when he pretends! Its kinda long, but here it is. Enjoy!
Thursday, September 10, 2009
Still Pregnant!
As of 12:15 a.m. I am more pregnant than I've ever been!! I had a day full of Dr. appointments today, but all went well. I survived my glucose test. That stuff really wasn't THAT nasty. I mean it wasn't my first choice of breakfast, but it wasn't that bad. I kinda like my method of DREADING something really bad so that when it actually comes it is not as bad as I thought! I passed the test, so that is good. I can keep eating donuts!
We had our big ultrasound where they measure everything and we are so very thankful that everything looked good. We got some cute pictures, but I'll have to post them when I finally finish cleaning off my computer. I am going to hopefully do that this weekend. This sono girl was VERY good keeping the secret. She told me to look away a few times, but I didn't mind. She never said, he/she or even it the whole time! I still think it looked like a boy! :) My Dr. checked me and the sonogram girl measured my cervix and it continues to be on excellent behavior! YEAH!
I feel much better heading off to Dallas knowing that things are good. I will see the Dr. in Dallas next week. That's all I have to update for now! Happy weekend!
We had our big ultrasound where they measure everything and we are so very thankful that everything looked good. We got some cute pictures, but I'll have to post them when I finally finish cleaning off my computer. I am going to hopefully do that this weekend. This sono girl was VERY good keeping the secret. She told me to look away a few times, but I didn't mind. She never said, he/she or even it the whole time! I still think it looked like a boy! :) My Dr. checked me and the sonogram girl measured my cervix and it continues to be on excellent behavior! YEAH!
I feel much better heading off to Dallas knowing that things are good. I will see the Dr. in Dallas next week. That's all I have to update for now! Happy weekend!
Friday, September 4, 2009
Nervous
I am a big ball of nerves right now. I feel like I have a lot to worry about. Like the fact that I'm 24 weeks and 4 days pregnant and last time I was pregnant I only had 4 days left at this point. I REALLY want more than 4 days. I feel good and everything still looks good. We will have another ultrasound/cervical measurement/DON'T TELL ME WHAT IT IS OR SAY HE OR SHE!! so that will be nice. It is weird because I know what this baby looks like. When I get my weekly emails that describe what the baby looks like, I REALLY know. I know what its fingers look like and its feet, its clear skin, and still closed eye lids. I am hoping to not see this baby until its fingers are chubby, it has booty cheeks (preemies don't get those...they're fat and they don't have any of that), its skin is soft and complete, and it can open its eyes and say HI to me! Well, it doesn't have to say hi, but I need it to at least be able to scream at me. We continue to be thankful for each day and look forward to making it one more day, one more week, one more month.....until December.
On a lighter note, I have to take my glucose test next week too. YIKES! I am dreading drinking that nasty stuff. Never did it last time. It was in my fridge waiting for my next appointment. In that case, I look forward to taking my glucose test!
THEN I HAVE THIS KID KANYON. We leave for "Feeding Camp" Monday the 14th. Things are different the second time around and I for sure feel different. Last time I was desperate and at the pits of panic and frustration with his feeding. I was borderline....no, scratch that...I had LOST my mind and just wanted HELP and I didn't care that that meant moving into a hospital for 9 weeks, leaving my husband, shoving a tube down my sons nose and throat. I just wanted help!!! And help came and we were so thankful. This time I'm not quite as desperate so I am dreading it more (see....ball of nerves). Kanyon is more mobile, active, etc. and in all honesty, i don't know how I'm going to let him scoot all over the place and on the floor of a hospital (even though its a fun/kid/rehab/not your normal hospital kind of place). I hope he sleeps. And don't even get me started on how I hope he EATS. They want to try to work him off the bottle but I'm just hoping the intense eating doesn't make him quit taking his bottle, because that would mean an NG tube and I CAN'T IMAGINE keeping one of those in him at this point. I just don't know how its going to work this time around and I'm......well.....nervous. I really do feel like he's going to do good eating. He has done well at home and I would be really surprised if he got down there and shut down. I know that is a possibility because its so intense that sometimes they just shut down, but I really think he can do it. I'm mostly worried about him getting enough fluids too. I hesitate to be optimistic about how he'll do because I don't want to be disappointed. Not to mention I will leave my house and not see it for probably 6 weeks and I'm not looking forward to being away from my home or my husband for that long (he can come on the weekends, but STILL). And Oh yeah, I'll be 26 weeks pregnant. The most crucial weeks of my pregnancy. I won't be enjoying the sights and sounds of the big city, I'll be trying to lay low and take it easy. I"m looking forward to meeting the Dr. I will see while I'm there. He's not right at Baylor, I'll have to drive a few miles up to Medical City (nervous) but I think it will be OK. I"ve heard great things about him. He's a high risk specialist so I think we'll get along. So...those are a few. But don't think that's all.
I'm also nervous about HALLOWEEN!!! I will either still be there or just be getting home. What will Kanyon be???? How will I have time to put it together?????!!!! I DO NOT want to spend Halloween in that place. My man has places to go! I mean, I kinda feel like I have a lot to live up to:
Our favorite Fighter
And Michael Phelps
Maybe this year he should be something lame that way I don't always think I have to think of something good. Yeah, maybe that will work.
On a lighter note, I have to take my glucose test next week too. YIKES! I am dreading drinking that nasty stuff. Never did it last time. It was in my fridge waiting for my next appointment. In that case, I look forward to taking my glucose test!
THEN I HAVE THIS KID KANYON. We leave for "Feeding Camp" Monday the 14th. Things are different the second time around and I for sure feel different. Last time I was desperate and at the pits of panic and frustration with his feeding. I was borderline....no, scratch that...I had LOST my mind and just wanted HELP and I didn't care that that meant moving into a hospital for 9 weeks, leaving my husband, shoving a tube down my sons nose and throat. I just wanted help!!! And help came and we were so thankful. This time I'm not quite as desperate so I am dreading it more (see....ball of nerves). Kanyon is more mobile, active, etc. and in all honesty, i don't know how I'm going to let him scoot all over the place and on the floor of a hospital (even though its a fun/kid/rehab/not your normal hospital kind of place). I hope he sleeps. And don't even get me started on how I hope he EATS. They want to try to work him off the bottle but I'm just hoping the intense eating doesn't make him quit taking his bottle, because that would mean an NG tube and I CAN'T IMAGINE keeping one of those in him at this point. I just don't know how its going to work this time around and I'm......well.....nervous. I really do feel like he's going to do good eating. He has done well at home and I would be really surprised if he got down there and shut down. I know that is a possibility because its so intense that sometimes they just shut down, but I really think he can do it. I'm mostly worried about him getting enough fluids too. I hesitate to be optimistic about how he'll do because I don't want to be disappointed. Not to mention I will leave my house and not see it for probably 6 weeks and I'm not looking forward to being away from my home or my husband for that long (he can come on the weekends, but STILL). And Oh yeah, I'll be 26 weeks pregnant. The most crucial weeks of my pregnancy. I won't be enjoying the sights and sounds of the big city, I'll be trying to lay low and take it easy. I"m looking forward to meeting the Dr. I will see while I'm there. He's not right at Baylor, I'll have to drive a few miles up to Medical City (nervous) but I think it will be OK. I"ve heard great things about him. He's a high risk specialist so I think we'll get along. So...those are a few. But don't think that's all.
I'm also nervous about HALLOWEEN!!! I will either still be there or just be getting home. What will Kanyon be???? How will I have time to put it together?????!!!! I DO NOT want to spend Halloween in that place. My man has places to go! I mean, I kinda feel like I have a lot to live up to:
Our favorite Fighter
And Michael Phelps
Maybe this year he should be something lame that way I don't always think I have to think of something good. Yeah, maybe that will work. Well, there you have a few strands of my nerves. Hopefully I can get my computer cleaned up soon and update. I have some good videos and fun pictures. I'd better go, its time for an hour with the eye patch/right arm tied up. Don't tell Kanyon, he'll run from me. Poor guy.
Subscribe to:
Posts (Atom)
