Whats Up at Feeding Camp=long post

Here we are to update everyone on our little life at feeding camp. We had a pretty good week last week, but everything went haywire this weekend. It started with them moving us upstairs for the weekend because of "staffing". That was annoying because we had to share a room. We shared a room with a little 3 1/2 year old girl so as you can imagine, it was crazy. She was fine and didn't do anything wrong, but we are an infant on an infant schedule and she is not. It was very very very frustrating. We spent most of the weekend out of the room in the hall or in a waiting room down the hall. It was very annoying. And poor Kory had the worst of it. He stayed with him Saturday night so I could go to CDR for the 50th anniversary. Kanyon was up and down all night (which is unusual) and since there was a mom and another kid sleeping in the room, Kory spent the night in the waiting room in a chair and eventually on the floor. On top of all of this, Kanyon started throwing up after every feeding. As you can imagine, this is not a step in the right direction. He was taking almost nothing from his bottle. Needless to say, we didn't just regress, we went all the way to the bottom. I got back around noon on Sunday afternoon feeling really really bad that all of this bad stuff happened when I was gone. Since Kory didn't have to work Monday we had an extra day with him. I stayed at the hospital Sunday night and was kept away not by my child, but by the grandmother of the girl in the room with us. She was snoring louder than anything I've EVER EVERY EVER EVER heard. I mean EVER. I absolutely couldn't even believe it. At one point I sat up from my junky, hard, tiny cot and said, "Are you kidding me??!!!' and didn't even wake her up enough to make her stop. I was so very annoyed. I literally didn't sleep more than an hour at a time. I would've left the room, but I was afraid Kanyon might wake up and I wouldn't hear him. Ughhh!! Tuesday morning, first thing, we got back into our room downstairs and I was so glad to be "home". Kanyon is doing a little bit better, but things are still kind of crazy. After lots of talking about poop, throw up, and how these 2 things might be being affected, we have gotten the poop thing under control and have decided that the throwing up is his reflux. It has NEVER been this bad. They said when they put in the NG tube that it make some kids' reflux worse, but nothing changed, so we thought it wasn't going to affect Kanyon. Oh not so lucky. We just don't know why it took 2 weeks to bother him. We are set to see a GI specialist in a week and a half and they are going to see if they can get that bumped up to see him sooner. We added a medicine that will hopefully help, but hasn't yet. We'll see. Right now we're just trying to get him back on track with his eating from the bottle and hoping and PRAYING that the reflux will get better. It is a bad, desperate, helpless feeling because we can't really do anything else to help him. The weekends have been bad and there have been (and are things coming up) that I have to be at, so it is hard to leave when things are so crazy. As you can guess, this has been a hard few days. I have wanted to give up more than ever before, but that isn't really an option since I can't just quit feeding him. Please pray for him, me, his therapists, and Dr. We are so glad that we're here and feel like we are in THE best place to get the things we need. On a more positive note, his OT and PT have said he's doing really great in therapy! In fact, not only did he ride the buckin' bronco (sit up) to the 8 second buzzer, he made it 10 seconds!!! Ok, this is crazy long. Thanks for keeping up with us and rooting us on....yet again! We really really really really appreciate it!



I am in a hurry so the pics are out of order.

Katie took this picture last night. Kanyon wasn't sleeping, but he was way zoned out. We loved how his hands were folded so nicely.



















Fun times with girls.....again! Us girls loved it and as you can see, Kanyon enjoyed Chelsea's hair.



















My little night owl.


















There is a nice aquarium in our little play room/lobby area. Kanyon likes to watch the fish. When we got here, he didn't really care about it, but now he takes it very seriously.


















No matter what position he's in.


















Kanyon's sweet friend Anna Lee gave him this really really REALLY cool barn. She had one when we went to visit and he really liked it. She is so thoughtful. It has animals inside that make noises. It is lots of fun!


















This has been the T-shirt I make Kanyon stare at for 3 hours each day to remind him of his job. Focusing particularly on the "keep it down" part.


















My laundry situation isn't really normal, so Kanyon wasn't getting to wear his shirts as much as I had hoped, so I hung them up in his room. Now he can look at them and get all psyched to eat. We really LOVE them.


















Saturday I went out to CDR for the 50th. It was really fun. Not only did I get to spend great time at CDR with old friends, but I got to hang with 2 of my fav little gals Avery and Roselyn. I didn't get a picture of Roselyn, we were too busy walking around (aka she pulled me wherever she wanted me to go) picking up tick tocks and playing in the dirt. This is the top of Avery's head. We had a blast with a cup of water for a very VERY long time. She was a little disturbed that my knees were dirty so she wanted to wash them. She is so nice. I wanted to pour it on her head so I did.


















This is the original Spencer clan. Looks small doesn't it? It is hard to believe this is all it used to be.


















While I was gone, Kory took a picture of this, one of Kanyon's favorite things. He lives to eat Kory's arm. Must be the fuzz.


















Good ol' Terri came by to see us before she headed back to Searcy from CDR. Fun fun fun!


















More very serious fish watching.


















These 2 gals are very very very HIGH on Kanyon's favorite people list (as if you can't see that by the look on his face).



















Just a little naked man.


















Last week Beth and Jarod came and brought us dinner. It was so very fun!!! Kanyon has hung out with Beth before, but this was his first time to meet Jarod. We had a great great GREAT time.


















When Kanyon is a famous piano player we'll have Jarod to thank for it.


















Kanyon with the future Mr. and Mrs.