Tuesday, February 5, 2008

Dr. Updates

Before I update about the Dr. visits I have to share a few pictures. Kory and I had a great idea to make our sister-in-law Sydni's birthday card using Kanyon and Ollie. Well, as you can see, it didn't turn out like we had planned.

"OLLIE SIT!!!!!!" "Kanyon, don't eat the sign!!!"
Notice Kanyon's blue mouth. Yes, he ate his sign so his mouth turned blue.
Checking out his blue lips
Saturday was a great day for us! Paul and Katie drove down to visit for the afternoon. It was so fun!!! Kanyon loved them so much! As you can see in the picture, Paul and Kory had to put Kanyon in his J's. Thanks Paul and Katie for coming!!!!!!!!!

Kanyon really and truly responds to his dad's voice unlike any other noise or voice. I loved this picture...and as you can see, Kanyon had a killer zit on his chin. It was so bad, but it is almost gone.
What could daddy possibly be doing????? Feeling his TOOTH!!!!!!!!!!! Yes, he has a tooth. One of his bottom ones is starting to pop through. He's showed no signs of it bothering him so we had no idea it was coming. I really can't believe it..he seems too little to have a tooth.
Mom did the spoon test. You could hear it clicking. The one right next to it might be coming in too.
OK..now for the Dr. stuff. Me and Mom headed to Dallas early Monday morning. Kanyon had his appointment with the eye Dr. there at Children's. He said that his retinas look good and that his perscription looks good so his 'eye balls" look good still. We are really glad about that. We did find out that Kanyon's cross-eyed days are numbered. He will have surgery to correct that March 18th. The Dr. says it may not completely solve the problem as far as Kanyon's tracking and looking at things. That could be processing in his brain that is slow. But, the surgery needs to be done and it could only help him see better, so we're hoping for the best there. Yes, another surgery makes my tummy hurt, but I know this needs to be done. I kind of expected that. It will be a day surgery, so that is good. After our appointment Mon. morning, we headed to the hotel to chill until our next appointment Tuesday afteroon. We had a fun time hanging out in the hotel...kind of like a vacation since we were somewhere new. These Dallas trips will be more fun when Mom and I can take him shopping with us! But we really enjoyed relaxing just the 3 of us. Tuesday afternoon we went for a feeding evaluation. We're trying to solve the mystery with his eating. He HATES it and throws a fit and won't open his mouth and therefore it takes us at least an hour to feed him. They did a thing where I fed him this wierd stuff and they could watch it like a video X-ray. The good news is there is nothing going wrong as far as how he's swallowing. No aspiration or anything like that. They did seem to think he was more efficient when the liquid was thicker. SOOO they gave us some stuff to thicken the milk and hopefully that will make him more comfortable and if he's more comfortable, then maybe he won't fight it as bad. I wish there would've been some magic answer to solve the problem, but I gave up on that a long time ago. Hopefully this will help. We'll see.



Cutie in the hotel

Of course they dilated his eyes, so he got some sweet shades to wear in the sun. I posted way too many pictures of this, but I just couldn't help it. The first two look like the return of gangsta Kanyon!




This one looked like Avery to me
This was not Kanyon's first time to wear shades. Remember this? Less than a week old...less than 2 pounds. But very very cool.

We have this month's RSV shot today (hopefully this is not our last, we're hoping our insurance will do one more in March) and then we should be through with Dr. stuff for a couple of more weeks! Kanyon is such a trooper through all of this traveling, Dr. offices, all the junk they do and then just being dragged around all over. He takes it all in stride and never misses a beat. Thank you Kanyon!!


25 comments:

Anonymous said...

haha! i see he's chosen blue in his gangsta kanyon pic. make sure he knows it's fa life. enjoyed our short time together this week. love you so much and always praying for your family.

The McCarter Family said...

I am so glad to hear that there wasn't any negative news at the dr. visits! YEA! The surgery will be hard for mom and dad, but I know that it will make things so much better in the long run! God is good! He is doing wonderful things in your family and in Kanyon's life. He is so cute!

Anonymous said...

Jaymie, Kory, and Kanyon-
I just wanted to let you know that many people that you may not know have been keeping up with this blog since we found out that Jayde and Kanyon were born, and you have been constantly in our thoughts and prayers. Praise God for the progress that Kanyon has been making! We will continue to cover your family in prayer during the upcoming surgery. God is good!

Melissa said...

What a trooper Kanyon is! I will be in prayer for the upcoming eye surgery. My nephew is 2 and had corrective eye surgery last week. He is healing well & I'm sure Kanyon will do the same! I bought the same cute blue striped top & jeans for our little boy...I hope he is as cute as Kanyon! I'm really looking forward to them getting to meet each other soon! Take care,
Melissa

annalee said...

there is no such thing is too many pictures of kanyon! the glasses pics are my favorites. praise God for the good dr. reports.

Summer said...

Thank you so much for the updates! I love the pictures! Like "anonymous" said, I've been keeping up with you since the day I heard about your family and I so enjoy seeing how Kanyon is growing. He is especially sweet and seems to be doing great!

Sydni said...

I can't believe he is getting teeth!! Woah. That might help him eat. Hahah.

I feel that you got good news over the past couple of visits. It would have been nice to get a great trick on the eating, but tricks are hard to come by!

Thank you so much for keeping us posted on all this stuff!

Thanks too for the pics... I'm so glad you posted the 'Happy Birthday' pictures. That was the best!!! Couldn't have asked for a better 'Happy Birthday' wish. Not in a million years. (I want to post them on Sayler's blog... will probably do that soon - if I can.)

Woops... really long comment. Sorry.

Katie said...

A friend showed my your website when Kanyon was born and I have been praying for him and watching his progress ever since. I am an occupational therapist in Grapevine, Texas and I work in the NICU and in outpatient pediatrics. I had it on my heart to write and tell you that some occupational and speech therapists are trained in feeding therapy. From what you describe, Kanyon shows a lot of aversive behavior with spoon feeding. A feeding therapist could be really helpful to problem solve with you, help him build his oral motor skills, and help feeding to be a positive experience for him. Many babies that are born premature have diffulty with feeding. At our clinic, we see many babies and toddlers with feeding difficulties and it is so rewarding to help them. I could write much more, but I will stop for now. In Christ, Katie

Emily said...

Jaymie, e-mail me at emily.whitehouse@allforkidsalaska.org and let's dialogue about Kanyon's feeding! It sounds like you were sent to someone experienced in swallowing but not necessarily feeding. Love the attempted birthday pictures. E-mail me!

allyo said...

Praise God for his improvements. Mr.Grand Kanyon-you never cease to amaze me! Love the glasses cool dude!

Leigh Ann said...

Gansta Kanyon is pretty sinkin cute! Glad you had a good time with Katie and Paul:)

Mindi said...

Love the sunglass pictures. He's too cute!

pruittsplace said...

jayme... lolo was saying her "get out of the truck/going into school prayer" this morning (we take turns doing that one) today... and at then end out of the blue she put kanyon's eyes before the Lord's throne.
we can't wait till kanyon gets to get around after flu and rsv season! my girls can't wait,... and cindy and i, we cant either.
you are doing a great job being a mom! there's no easy day being a parent, but there is joy! you guys keep it up!

Anonymous said...

I have read your blog for a very long time...What I have gained from all this is how faithful God is....and how BLESSED little Kanyon is to have parents like you. You show and demonstrate everyday what unconditional love is. Your persistance and dedication to always look for the positive and seep him going forward is incredible. God knew Kanyon needed very special parents, and you two fill the bill..Its been awsome to watch this via the blog....How many more parents you have helped by this arena. You will not know untill Jesus comes to take us home...
Trusting His Promises

Anonymous said...

Jaymie,
I am addicted to your blog and I am always so happy to see updated and see how Kanyon is doing. I love the pictures with the shades! Seeing that little picture of him in the hosipital reminded me of how far he has come and I am so thankful for that. You and Kory are absolutely amazing and I admire you so much for going through so much and having the wonderful outlook on life that you have. Kanyon is a precious gift from God, and it is obvious that the two of you cherish him more than anything and are doing everything you can to keep him healthy. I love you guys!

erin faubus

The Celiac Diva said...

I'll be praying about the surgery...praying over the doctors and your precious baby. ...and by the way, I LOOOOOOOOVE all the pictures!!! Keep em coming. They are precious and his smile is contagious.

TeamThomson said...

Hi! I taught with Leah Mercer in Friendswood and she shared your page with me. I have kept up with you and you have been such an inspiration to me! The reason I'm contacting you is because my cousin's water broke at 21 weeks and she is in the hospital and in need of some encouragement. Do you mind e-mailing me so I can share more details and give you her e-mail?? teamthomson@gmail.com
Thank you so much!
Johnna

Anonymous said...

Of course the glasses pics are cute, but I LOVE the one with the striped hat! That's a crop-blow-up-and-framer!

Karl, Andrea, Kaden and Leland said...

We will continue to remember Kanyon and his upcoming eye surgery. You are such a trooper!

Molly Woodall said...

I think it's way cool that Gangsta K wanted to dress up like his "way cool Grandma"! too cute!
What a precious picture of Kanyon looking at Kory....that is definitely PRICELESS!
Love you 3!

Tammy said...

I agree that there is no such thing as "too many" pictures of that kool Kanyon! You are such a good mom and we love you guys a lot! We will be praying about that surgery.

daughteroftheking said...

First I must agree with the others that there is no such thing as to many pictures!! I love to see them. So glad he got his first "toofy" as we call them around here. I love to see those smiles with the little teeth showing! We will be praying for Kanyon's upcoming surgery.
Love,
Missy J

Rachel said...

The new pictures are SO CUTE! Tell Kanyon we love and miss him.

Kendra said...

Blog lurker Kendra here - I'm a speech therapist that works with Katie (earlier comment) - she and I follow your sweet family and little Kanyon faithfully. I'll echo what she and Emily commented on - I know that speech therapy or occupational therapy with a feeding specialist could help you guys out if you are interested! I'm curious to know if they might recommend vital stim therapy . .it trains the muscles involved in the swallowing process to work more effeciently (that's my VERY basic understanding of it at least!). Anyway, if you are interested in any more information I could forward to you, email me at kendrav@baylorhealth.edu. Blessings on you and your sweet one - he is SOOO cute!!!

Britney K said...

Hey Jaymie! Just wanted to let you guys know that I am praying for you today. I love reading your posts. Blessings to your family.

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