Monday, April 30, 2007
This is his picture the day he was one month old. You can see how big and bulky this C-PAP is...it smashes his nose and bothers him. He LOVES to have his arms over his head like this. They are almost always up. When he has the C-PAP on, he likes to grab the sides like he's doing in this picture!
This is what the VapoTherm thing looks like..you can see his sweet little face! By the way, the white tube in his mouth is how he gets his milk!
Just another sweet little picture
His dear friend Terri Lee gave him this hat made especially for micro-preemies and it is so great. We had to wait for him to have the IV out of his head. I didn't put the hat on right..I was supposed to tie it off, so he kinda looks like Abraham Lincoln! Next time I'll do it right. Thanks Terri..we love the hat!
Another hat picture and his eyes are open and looking around!
Keep the prayers going for this little guy...everything is just so hard for him right now. I hate that he has to work so hard just to get by, but I know that prayers for strength will get him through. He is in his 30th week (gestational)..each day is one step closer! Thank you again for everything!
Friday, April 27, 2007
On another note, Kanyon wants to send out a special birthday wish to his Auntie Ali and his cousins Franklin and Nathan.
Thursday, April 26, 2007
Wednesday, April 25, 2007
Tuesday, April 24, 2007
Here he is with his eyes open!
And we're back to eyes closed, but he is giving everyone a thumbs up sign...letting us know everything is going to be OK!
His nurse Kathy wrote this note for him..they won't let him out of his bed to write on the board so she had to write while he dictated.
I'll write more when I have more info. Keep those prayers going!! They will work!! My dad has figured out a pretty good prayer....open his brain (so it will drain), close his heart, open his lungs, and keep his tummy going!! I guess that's it in a nutshell!
Monday, April 23, 2007
While we were in there tonight, his Dr. was there so we got to talk to him. He said they took a second look at the ECG of his heart and that they've decided the opening was larger than they originally thought. He has had increased heart rate and a few other minor signs, so they are going to go ahead and treat this with medication starting tomorrow morning. They will stop his feedings and give him his medication over 36 hours. Dr. Chris said that about 80% are fixed with this first round and that 90% are fixed with 2 rounds. SO..hopefully this will work the first time. If the medication doesn't work then he'll have to have a surgery and of course we're wanting to avoid that. If this PDA (thats this little heart thing) has been affecting breathing, oxigination, or his heart rate then they said we'll see a big turn around once it's fixed. Please pray for his little heart.
Dr. Chris said they'll do another head scan to check the swelling Thursday or Friday. There has been growth over the last 2 days. I fully believe that all these prayers will turn that around.
Still on antibiotics for 2 more days to make sure there is no infection. They can be tough on his liver and kindeys so we're kind of ready for him to be off of those.
We thank you so much for your prayers. We are honored to have so many people praying. We don't ask you for these prayers lightly or with greed, we are so thankful for all of you who pray. I have so much comfort and I believe so strongly that this WILL make a difference--that all of these prayers are working and will work!
Please keep praying specifically for the swelling of the ventricle to go down on its own!!!
Sunday, April 22, 2007
I mentioned yesterday about the enlarged ventricle in his brain. I want to ask specific prayers for that. They do know that it is not draining the fluid out, so that is why it is enlarged. It could be because of a clot that has it stopped up..we don't know that for sure. But, we do know that we want that to open up and drain on it own so that they do not have to intervene. Please pray for that to heal and level out...we know that this is another chance for GOD to take care of Kanyon. They will measure his head twice a day to monitor the growth over the next several days, so we'll update you as they update us. Thank you so much.
Saturday, April 21, 2007
Well, in the words of Kanyon's Dr. this morning...Kanyon got a tune up. His apnea and Bradys (heart rate drop) never did get better, so about 2am this morning they put him back on the vent. They want him to rest and take some time to grow and get a little stronger and they'll start all over. Kory and I can't help but feel a little disappointed, but we also know they told us from the beginning that little guys like him will go back and forth a few times before its over for good. We were just honeymooning there at first and we got spoiled. They also gave Kanyon a blood transfusion so that should help perk him up and carry that oxygen a little better. When we went in this morning, there was kind of a lot going on, so I'll just list it out so that you can know exactly what needs our special prayers.
- His blood pressure was a little high, they're hoping once he calms down and recovers from everything they did last night that that will level off.
- They did a head scan since they hadn't done one in a few weeks. His ventricle where fluid for brain and spinal cord are is a little larger than normal. There are several possible reasons for this. They will just watch it each day and hope that like most things it just fixes itself with a little growth. Pray that it does...otherwise they have to take steps to fix it.
- They're doing an echocardiogram to look at his heart and make sure there is no murmur there. All babies have an open duct that closes when they're born. Due to prematurity, this duct doesn't always close or doesn't stay closed. This is common, but we're of course hoping that he doesn't have it. We'll know more about that later today.
- Eating is still a major thing and thankfully, that has gone really well. That is GREAT...it points to no infections in his tummy that he is at a high risk for. So thank GOD that is going well and pray that he keeps it up.
I think that is all for now. I think we are in the middle of one of those slopes on the roller coaster everyone told us we'd be riding. Even when you know it will happen, its hard not to get discouraged and worried. We have been so blessed by the prayers and support that we've received thanks to this blog. You have no idea how much it encourages us and keeps us going to read all of the comments. That was always a highlight of our day when we were in the hospital and someone would print them out and bring them to us. You just have no idea how much comfort and peace we've felt because of your prayers. We are humbled and we thank you so much. Please continue to pray for his Dr. and his nurses. They are all so wonderful and they work so hard for him and for us. Thanks again for keeping up with our little man. We can't for everyone to meet him...we pray that day comes soon. As always, stay tuned for updates as we have them.
**all medical students, nurses, and doctors don't laugh at my medical explanations, spelling, or anything else...just 3 weeks ago I spent my time with 7 year olds....we don't talk about all this stuff in 2nd grade!!
Friday, April 20, 2007
Thursday, April 19, 2007
"Kanyon is still having the apnea and heart rate drop today. They say that as long as they can pat him or rub his feet to 'wake him up' and remind him to breathe on his own they will just keep things as they are. If they have to actually give him breathing assistance, then they will put him back on the ventilator. This apnea seems to be a common problem because this is the kind of breathing he would be doing inside my tummy..its just that sporadic shallow breaths don't work once you're out of the womb! We are still praying (and want everyone else to too) that this will stop. We sure don't want to have to take the step back to the vent. They say as long as it stays this way, they just have to wait for him to outgrow it...which usually might come around week 33. We're not even to week 29 yet! One of the first days we were there, Jim the nurse told us it was going to be a roller coaster and he reminded me today that this kind of thing is what he was talking about. Dr. Chris came in this afternoon while I was there and kind of said the same stuff. I guess it's good that they aren't freaking out about this, but I sure would like to keep coasting through without having to take steps backwards. I really believe that if we're all praying for this, that it can stop. He doesn't have to be like 'most babies' - we want him to be better than most! :)"
Let's honor Jaymie's request and pray for no more apnea!
Wednesday, April 18, 2007
Monday, April 16, 2007
Sunday, April 15, 2007
Friday, April 13, 2007
"The money you raise goes directly to research to find the causes of premature birth and how it can be prevented, to support families whose babies must spend time in neonatal intensive care units and to provide women with the latest information on having a healthy pregnancy."
I found that there are walks taking place all over the country on various dates in the near future if anyone cares to participate in any way. I found that there is one in Paris on April 28th, and the one in Longview is on April 21st. You can register online as an individual or you can create a team, and it will create a personal webpage for you that you can send to other people to have them sponsor you. The website is www.walkamerica.org. The links for Sarah and her family are www.walkamerica.org/sarahbrennan, www.walkamerica.org/DevB, and www.walkamerica.org/krisas. You can sponsor one of them if you want to, or you can participate on your own if you want to.
Thursday, April 12, 2007
Wednesday, April 11, 2007
Here's Jaymie and Kanyon with Melissa, one of Kanyon's favorite nurses:
Here's Jaymie and Gay with Kanyon:
Tuesday, April 10, 2007
Camp Deer Run
1227 CR 4590
Winnsboro, TX 75494-4967
Yellowstone Bible Camp
c/o Frank Arnold
2565 Arnica Dr.
Bozeman, MT 59715
Jaymie said that Kanyon weighs 1 lb. 15 oz. today - inching closer to 2 lbs. She also said that they are going to try again tomorrow to take him off the ventilator and put him on the CPAP, so pray for his little lungs.
Monday, April 9, 2007
Sunday, April 8, 2007
Kanyon is up to 1 lb 14.7 oz. Jaymie said to be sure and note the .7 because that's a big deal in their world! He's closing in on the 2lb. mark! He was doing good today, just relaxing. He's up to 9cc per feeding and doing great with that. They think they'll take him off of his IV feeding within the next week. That will mean he's getting all he needs from Jaymie's milk. The digestive system is a big concern for preemies and his has been great so far. Continue to pray and thank God for that as well as for his little lungs. Just pray for all parts of his body inside and out to grow grow grow!!
Saturday, April 7, 2007
Friday, April 6, 2007
Thursday, April 5, 2007
create your own visited states map
or check out these Google Hacks.
create your own visited countries map
or vertaling Duits Nederlands
Note: after posting, I noticed that the maps are cut off to fit in the left pane of the blog, so I also placed them at the bottom of the page where they will not be cropped. Rather than putting an updated map on a new post, I will probably just go back and update the maps on the bottom of the page if we find out about more states or countries.