Sorry..no post yesterday! But, we do have some news today. Kanyon's Dr. called this morning and said that he has decided that he needs to go to Dallas to see a neurosurgeon there. His hydrocephalus which is the fluid on in his brain is not getting better. They haven't been able to draw any fluid out and his soft spot is still bulging. SO...the transfer team from the hospital in Dallas is coming to get him either tomorrow or Sunday. We're still not sure. The surgery procedure they are doing will help relieve some of the pressure in his head by creating a way to draw out some of that fluid from his head instead of from his back like they've been trying to do.
I will attempt to explain it the best I know in my unmedical way. They are going to insert a small tube down in the ventricle. Then they will have a "reservoir" like a bubble or balloon just under his skin. With this, they will be able to drain the fluid into the reservoir as needed. It will stay in there for a while so that they can tap it whenever they need to. Hopefully, this will give him more time to allow the clot to resolve on its own and therefore allow the flow of that fluid to resume. If by the time he's 4-4 1/2 lbs the clot has still not resolved and they're having to draw a lot out of his head still, then they will decide what step to take next.
I feel pretty good about the procedure and I know he's in very good hands, but the moving and readjusting will be a lot for him to handle. Please pray that not only the surgery goes well, but that this does not disrupt his progress with his breathing and eating (which are both going pretty well right now). Our hope is that this will help fix this problem and we can move past this and move on! Please keep the little guy in your prayers over the next few days. Pray for safe travel there, successful surgery, and a quick recovery!
Right now they would like to do all of this Monday and he could be back here in Longview by Wednesday. But, we don't know exact days and times for all of this, so we'll keep everyone posted the best we can...that might mean the return of Rachel the Family Blogger!!
He was held a lot today and I think that did us all a lot of good. He looks great and is doing well, so if we can get this behind us, we may just TAKE OFF! :) Thanks for everything!