Sorry its been a few days since I've posted. Things are going pretty well with Kanyon. He is still off the vent, so that is great. He was on a C-PAP, but now he is on what they call a vapotherm. It does the same thing as a C-PAP, but it circulates the oxygen differently and it is more comfortable on the outside and on the inside. We are praying that he can be strong enough to stay on this and not have to go back on the vent. They are adding more calories to his feedings and he is now eating 24 cc's per feeding. I think they're trying to pack on some pounds. Speaking of, he is 2 lbs. 10.7oz. So far they have not heard his heart murmor, so they are assuming it is still closed! YEAH! As for his brain and the ventricle situation, they are calling it "non progressive" its not getting significantly bigger..so no treatments are ordered for that as of now. Keep praying for this to resolve on its own. He had a head scan sometime today, but we've not heard the results on how it looked. This new breathing machine seems to have helped his lungs, they sound more clear, so thats good. I think they guy just needs to get bigger. I just kind of threw a ton of information at everyone, but that is pretty much the way it is! Keep praying for him. We had a great weekend...we just need him to keep going! OK OK..here are the pictures!!!
This is his picture the day he was one month old. You can see how big and bulky this C-PAP is...it smashes his nose and bothers him. He LOVES to have his arms over his head like this. They are almost always up. When he has the C-PAP on, he likes to grab the sides like he's doing in this picture!
This is what the VapoTherm thing looks like..you can see his sweet little face! By the way, the white tube in his mouth is how he gets his milk!
Just another sweet little picture
His dear friend Terri Lee gave him this hat made especially for micro-preemies and it is so great. We had to wait for him to have the IV out of his head. I didn't put the hat on right..I was supposed to tie it off, so he kinda looks like Abraham Lincoln! Next time I'll do it right. Thanks Terri..we love the hat!
Another hat picture and his eyes are open and looking around!
Keep the prayers going for this little guy...everything is just so hard for him right now. I hate that he has to work so hard just to get by, but I know that prayers for strength will get him through. He is in his 30th week (gestational)..each day is one step closer! Thank you again for everything!