Saturday, April 21, 2007

"Tune Up"

Before I get bogged down in medical terms, this is not Rachel...its actually me, Jaymie, attempting to make my first post...we'll see how it goes. You can expect worse grammar, bad spelling, and too many attempts at medical terms. I'm not a genius like Rachel. But, I thought I could handle this so here we go. Of course a big thank you goes out to Rachel for all she's done over the last 3 weeks. She is definitely not gone from the blog forever, she's still gonna help me out! So..thanks Rach! You're the best!

Well, in the words of Kanyon's Dr. this morning...Kanyon got a tune up. His apnea and Bradys (heart rate drop) never did get better, so about 2am this morning they put him back on the vent. They want him to rest and take some time to grow and get a little stronger and they'll start all over. Kory and I can't help but feel a little disappointed, but we also know they told us from the beginning that little guys like him will go back and forth a few times before its over for good. We were just honeymooning there at first and we got spoiled. They also gave Kanyon a blood transfusion so that should help perk him up and carry that oxygen a little better. When we went in this morning, there was kind of a lot going on, so I'll just list it out so that you can know exactly what needs our special prayers.
  • His blood pressure was a little high, they're hoping once he calms down and recovers from everything they did last night that that will level off.
  • They did a head scan since they hadn't done one in a few weeks. His ventricle where fluid for brain and spinal cord are is a little larger than normal. There are several possible reasons for this. They will just watch it each day and hope that like most things it just fixes itself with a little growth. Pray that it does...otherwise they have to take steps to fix it.
  • They're doing an echocardiogram to look at his heart and make sure there is no murmur there. All babies have an open duct that closes when they're born. Due to prematurity, this duct doesn't always close or doesn't stay closed. This is common, but we're of course hoping that he doesn't have it. We'll know more about that later today.
  • Eating is still a major thing and thankfully, that has gone really well. That is GREAT...it points to no infections in his tummy that he is at a high risk for. So thank GOD that is going well and pray that he keeps it up.

I think that is all for now. I think we are in the middle of one of those slopes on the roller coaster everyone told us we'd be riding. Even when you know it will happen, its hard not to get discouraged and worried. We have been so blessed by the prayers and support that we've received thanks to this blog. You have no idea how much it encourages us and keeps us going to read all of the comments. That was always a highlight of our day when we were in the hospital and someone would print them out and bring them to us. You just have no idea how much comfort and peace we've felt because of your prayers. We are humbled and we thank you so much. Please continue to pray for his Dr. and his nurses. They are all so wonderful and they work so hard for him and for us. Thanks again for keeping up with our little man. We can't for everyone to meet him...we pray that day comes soon. As always, stay tuned for updates as we have them.

**all medical students, nurses, and doctors don't laugh at my medical explanations, spelling, or anything else...just 3 weeks ago I spent my time with 7 year olds....we don't talk about all this stuff in 2nd grade!!

23 comments:

Kristie Lee said...

It's great to hear from you Jaymie! We are still praying for Kanyon, you and Kory! We love you guys!! Kristie and Kimberlynn Lee

alison said...

hi jaymie! still prayin for our little baller of course. i'm counting down the days till i get to hug your neck! love you so much! tell kory i said hi and give kanyon a little pat on the behind from me...

Anonymous said...

Jaymie, give yourself a little credit, you have so good blogging skill. I hate that today is a "slope", but we're still praying! I hope Kanyon knows how loved he is!

Jeanna Caldwell said...

Just want you to know that you all continue to be in our prayers. I am reminded of a little turtle and the phrase "Slow and Steady Wins the Race." This is one of many phrases that got me through any of Caden's setbacks. As much as I was ready for him to get better and leave the hospital, I realized that these steps back would make him stronger to fight whatever would come his way, and our bond with him even stronger. The Lord is VERY mindful of all that we endure as parents and He will see you through. Keep your faith strong and remember that He is watching over your family. Kanyon is one of His miracles brought here for a very special reason. We think about you guys all the time and we are sending lots of prayers your way.
"Slow and Steady Wins the Race!"
Love, the Caldwell Crew
Jeanna,Mark,Chase,Casey,Emily, Camri and Caden
www.caringbridge.org/tx/cadencaldwell

Anonymous said...

Jaymie,
It's good to hear from you. Just think, he isn't even suppose to be here yet. He has conquered so many things with your nourishment. We will continue to pray for all,and trust God's guidance. I bet your second graders think of you often. Keep the news coming. Take care of your family and yourself.
Love,
Sue and Lynda

Anonymous said...

Jaymie,
It's good to hear from you. Just think, he isn't even suppose to be here yet. He has conquered so many things with your nourishment. We will continue to pray for all,and trust God's guidance. I bet your second graders think of you often. Keep the news coming. Take care of your family and yourself.
Love,
Sue and Lynda

Joe David said...

Me and Stefany just want you guys to know we are praying for all three of you and we have other people here in San Antonio praying for you as well.

sarah brown said...

It's great to see you on here! Rusty and I check this often to see all of the updates and I think you guys are some of the strongest people I know. Know that we are all praying for your family, and we can't wait to see the "going home" pictures on here!!
God Bless
Sarah (Gray) Brown

Julie said...

Jodi's cousin here-
Continued prayers from Virginia. I check on Kanyon everyday and we pray for him and his Mommy and Daddy often. Thanks for letting us be apart of your experience.
Julie

Anonymous said...

Jaymie,
I thought you did a wonderful job with the spelling, despite the fact you couldn't walk across the hall and ask me. Ha-Ha! I am still praying and will continue. Please keep your chin up, things have been going so good. We will just pray for them to level out again and for Kanyon to again coast on cruise control. Please remember to contact us if you need anything.
Love ya,
Brandi Barlow

Anonymous said...

Great to see you are on the blog Jamie. I check it every day and am riding this roller coaster with you guys... Keeping you in our prayers and I just know in time, he'll be this big ol' bouncing bundle of joy and we'll all be amazed that he started off so small. We love ya! Raylene & Ronnie

Anonymous said...

Jaymie-
"HIGH FIVE" for the blogging skills! We (& our church)are still praying and thinking of you, Kory, and of course Kanyon daily! Can't wait to give you a HUG! Kanyon is a strong little man! Love ya,
Tracie Cole

Anonymous said...

Life would not be life without a few rollercoasters. We lift you up in prayer and think of you always. --the Tutts

Blessed Assurances said...

I love you couz, i am praying! sending you a hug via blogland

Robyn said...

I can't remember if I've already shared this (If you don't already, you will soon experience many lapses of cognitive skills as a mom), but it's worth sharing again. I just love Isaiah 40:11, and it just fits the roller coaster y'all are on, as well every parenting journey. When I worry or they run fever or they bump their heads or I think of all the things to come we can't possibly control, these are the words that calm my heart and remind me of what is true and so amazing: "He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to his heart; he gently leads those that have young." Our babies, whether asleep or awake or at home or school or in hospitals are "close to his heart", and I just love that He is "gently" leading all of us moms and dads who love them so much. You did great with your first post on your own--we love you and are praying! Robyn

Ashley said...

It is good to hear from you, Jaymie! We all love you so much and are praying for you. Take care of yourself during these critical times as well.

We will be praying for Kanyon. I pray that the highs on the rollercoaster always out weigh the lows.

Ashley

Jodi said...

Welcome to blogland J-me!! We're glad to have ya! Still praying like crazy around here for your sweet Phamily; thanks for the medical specifics to pray for. And give yourself some credit, you sound like an expert!!! :) I am echoing what Ashley said... that the highs will always out-weigh the lows. We love you and hope to see you soon and hug you in person!!

mindy tyndall said...

Great job posting! We are in constant prayer and Jack prays every night for Kanyon! I posted a few photos of Jack's visit with his mommy today if you want to check those out. Christine is anxious to talk to you.
Hugs and prayers abounding...

Andra Fleming said...

Good to hear from you Jaymie! Just know that we are still praying for you and Kanyon!
Love, Andra Fleming

Tracey said...

Way to go on your first post!! We continue to pray for you, Kory, and baby Kanyon!! - Tracey Shepherd

Anonymous said...

James---
Great job blogging...and I thought you did an awesome job of explain' the terminology!
You guys are in our thoughts and prayers...
Hugs,
'The Bulls Herd'
Derald, Lesa and Haley

Rachel said...

Great job on the blog, Jaymie! You know I'll still help anytime you need me, but I know people will love to hear things straight from you rather than secondhand. You have such an amazing faith and a great perspective on all this. You three are constantly in my prayers, and I really feel like this is just a little bump in the road for sweet Kanyon. He is tough like you, and I just know he'll continue to fight and grow. I just can't wait to hold and squeeze him! Not too hard, I promise.
Love y'all so much,
Rachel

Kendra said...

Hey Jaymie!
I loved reading your post. I felt like I could hear your voice saying each word. We're praying daily for you and I know many people at the church in Decatur are also.
Love, Jeremy, Kendra, and Cassidee