This picture is pretty much how we roll these days....arm in arm (and yes, me in a neck pillow....don't hate I have to keep from getting cricks in my neck!)
I know its kinda blurry, but the room was kind of dark. klp pretty much sleeps the days away. He will wake up and eat and talk a little, and then go back to sleep. They say thats what these kids do. Besides feeling yucky from the toxins built up, his red blood cells are low, so he's got a double whamy for energy zappers. He is in dialysis now. This time they took him to another room. Don't they know I don't like change? Especially in hospital situations, I like staying in my little cave of a room. No need to leave....but they made us leave today. My MIL is in the room with him so that I could visit with some friends who stopped by and so that I could take a shower. We have a bathroom in our room, so that is nice. Kanyon's numbers were all a little low, so they are giving him another blood transfusion with his dialysis. They said its not uncommon for kids to need 2 transfusions a day with this. Yesterday he only had one, so we are hoping this can be his only one today. YEEEESH! Other than that, not much has changed. I am just hating that his body is still so sick. I think that makes a lot of things harder. His treatment today was 3 hrs. and the plan is to take tomorrow off, do another one Saturday for 3 hrs. Then take Sunday off and as long as his numbers stayed OK, we will continue skipping days.
Boy is this ever a game of patience. I think next time they transfuse Kanyon, I should ask for a patience transfusion!! :) My MIL is here with me, so that is good and we are having lots of friends stop by to visit. I think I'm in a good mindset for dealing with this but I do feel like I NEED things to keep going right. As long as we are on a normal path, then I can handle it. I'd just like to avoid any detours or road blocks. So far so good, so we will keep on truckin'.....or as you saw in the picture, keep on laying in the bed arm in arm! :)