Things continue to move in the right direction with klp. He didn't get dialysis or a transfusion today. His blood levels had gone down a little tonight but not too bad. That is really good considering it's been 2 days since he's had any blood and we could barely make it 12 hrs a few days ago. Along with feeling better comes the challenge of keeping a better-but-still-sick-boy happy and entertained. As you see in the pic below he is unhooked from moat wires and enjoying the couch in our room while he writes with colored pencils.
I am clueless going in to each day because all decisions ate based on his labs so we will see what they say in the morning. As always we treasure the prayers. Thank you so much!!